OMS Manual/Chapter 12

Introduction (updated May 2026) There are numerous websites and social media sites for information on OMAS. This section lists sites that consistently provide updated information and are commonly referenced by OMAS specialists and caregivers. Web Sites (updated May 2026) OMSLife Foundation - The OMSLife Foundation – OMSLife Foundation - This is the primary web site for all things OMAS. It offers information for new patients, holds important documents such as the treatment consensus statement and education letters, and offers the presentations of prior OMAS Caregiver Conferences and Medical Workshops. center|thumb National Organization for Rare Disorders (NORD) - National Organization for Rare Disorders | NORD - This site offers information on over 7,000 rare disease including updated information on OMAS and an animated video. This is a great resource to begin collecting information on OMAS. Dancing Eye Syndrome Support Trust (DES) - Dancing Eye Syndrome | OMAS | Repeated Eye Movement - This site is based in the UK and is a partner with OMSLife Foundation in a number of activities including hosting the International OMAS Medical Workshop in Oxford England. center|thumb OMS Patient Registry - OMS Patient Registry – Natural History Study - This patient reported registry is provided by OMSLife and is hosted by NORD. The purpose of this registry is to collect large data samples from patients worldwide to use for research. GARD Social Media (updated May 2026) coming soon Podcasts (updated May 2026) coming soon